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At NoTube, we’re proud of our 90.5 percent success rate, but we know that it’s hard to just take our word for it. Instead, we want to give you evidence that proves it. Here are our responses to three common suspicions people have about our success rates.
Myth #1: You Get Only The Easy Kids
“You get only the easy kids” is something we often hear from other professionals and parents, but it’s not true. Take a look at the sample diagnosis list below. As you can see, we frequently work with children suffering from the most extreme cases of prematurity, heart conditions, and intestinal issues—often, many or all of these issues exist within a single child. We have experience working with children who have incredibly rare genetic syndromes—for example, one of our patients is one of only three documented cases in the entire world.
Myth #2: You Only Get Kids Who Love Food
Another common misconception is that most of the children we treat have some sort of love for eating and will simply start eating by themselves. Actually, it’s quite the contrary; a few more than a third of our little patients don’t have any relationship to food prior to being weaned, and another third react negatively to food. We work with all these children to help them to learn how to eat and enjoy something autonomously that they previously disliked.
Myth #3: You Get Children Who Have It “Easy” With The Feeding Tube
Along with the common misconception that we treat children who don’t have any diagnoses but tube dependency, we often hear that the children we treat are not really affected by the feeding tube in any negative way. This is false; in a study of 268 patients, we found that about half of them suffered from gagging, retching, and frequent vomiting – sometimes more than 30 times a day! Almost half of these little patients also suffered from limited to no hunger or desire to eat prior to the tube wean. Since many of these symptoms are related to the feeding tube, we find that, in many cases, they disappear within days of the start of our Netcoaching program.
We know that each child’s case, history with tube feeding, and relationship to food is unique, and we offer solutions tailored to fit your child and family. If you have questions about how successful tube weaning might be for your child, contact us.