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Dr. Amanda Rubio is a gastrointestinal pediatrician at the University Hospital of Grenoble, France. NoTube had the opportunity to cooperate with Dr. Rubio on three occasions. Our cooperation allowed a more comprehensive assessment of the child’s condition before the beginning of the therapy. We communicated by e-mail or by phone and through our telemedicine platform when the therapy started. Thus, we were able to communicate directly and information was shared at the same time between the parents, Dr. Rubio and our team.
“I had the honor of taking part in the open house for health professionals in Mayenne in May 2013 and being invited by Prof. Dunitz-Scheer, MD to her consultation hours.
I went there without any prior assumptions and our meeting left me with very positive impressions. The nutrition via the tube is reduced quickly but carefully, since the team monitors the behavior and the health of the child closely in order to provide tube weaning that goes along with an individual, pluridisciplinary treatment (psychotherapy, physiotherapy, music therapy, etc. several times per day) as well as consultation hours before noon and in the evening (from Monday to Sunday). To me it seems impossible to provide such an intensive care in another context than in the course of the Eating School.
The atmosphere is very cozy; the dynamics is very positive and encourages the children and their families to increase their efforts.
Since 2013, three patients from Grenoble were able to take part in the NoTube Eating School.
Despite the treatment of their eating disorders, logopaedic and psychological treatments, these patients had been suffering from a severe tube dependency without any oral intake for several years. All the attempts of tube weaning had failed, made them lose weight and did not have any positive effect on their eating situation.
Participating in the course was a revolution for these children and their families – after all they started eating!
One of these children (Eating School 2013) actually is completely tube free since the course ended. The other two (Eating School 2014) take a very small amount of food via their feeding tube, which is reduced gradually by us. Their current feeding situation is very satisfying.
Since one month, the NoTube team and the local doctors are taking care of the follow-up care together, which is perfect for the children who need a little more time for the tube weaning.
In case I will again face problems in the weaning of long-term tube-dependent patients, I will not hesitate in approaching the NoTube team.”
Dr. Amandine Rubio
Practicing doctor at a university hospital for pediatrics and pediatric gastroenterology and nutrition.