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A new year has begun! To welcome 2017, we are introducing NoTube’s “topic of the month”. Each month, we will be choosing new topic to explore on our homepage, through social media and in our newsletters. 2017 also marks the beginning of NoTube live-chats, where it will be possible to ask questions on a range of topics and have our therapists answer. Also be on the lookout for testimonials from parents of children who have attended NoTube, either through an Eating School or our online Netcoaching program.

At NoTube, we treat children of different ages, with a broad range of medical histories. Each one of “our” children is unique in their development and personality! However, the underlying disease which led to tube dependency or an early eating behavior disorder is often the same. We will be covering some of the most common diagnoses over the coming months to provide information, to remind you that you aren’t alone with this problem, to highlight our treatment options and to explain our collaborative approach.

In February, we begin with the topic “Premature infants and tube dependency/early eating behavior disorders”. This theme will discuss children who were born premature and were fed via tube for the first few weeks of life. Unfortunately, many children stay on tube feeds for months, or even years, and can develop eating disorders/failure to thrive. You can expect an article of Prof. Peter Scheer as well as a live-chat with Dr. Sabine Marinschek, covering this topic.

Over the course of the year, we will also look at tube dependency/eating disorders in children with malformations requiring surgeries, such as esophageal atresia (a congenital malformation that causes the esophagus to end in a blind-ended pouch rather than connecting normally to the stomach) or diaphragmatic hernia (a defect or hole in the diaphragm that allows the abdominal contents to move into the chest cavity), and we will take a closer look at feeding disorders in children with heart defects. We will also broach the issue of genetic syndroms, such as Down syndrome and CHARGE syndrome (a syndrome causing malformations in different organs), as well as diverse growth disorder syndromes (Noonan syndrome, Silver Russel syndrome, Cornelia de Lange syndrome and Smith-Lemli-Opitz syndrome). Children who suffer from oncological diseases may also be susceptible to an eating disorder, which must be treated after stabilization of the medical situation. Moreover, a large number of children with cerebral palsy suffer from feeding/eating disorders. In addition, we will be discussing the topics of “picky eating” (children who eat only a small variety of foods and refuse all others) as well as “infantile anorexia” and non-organic failure to thrive. Other topics of interest will also be covered so, please, keep checking back with us throughout the year .

We hope to take you on an interesting journey through our “topics of the month” and kindly ask for your active involvement to help us reach our goal to help as many children as possible during their transition to their best possible eating behavior!

Sabine Marinschek