How time flies – another year is drawing to a close and we at NoTube look back on eventful months, in which we successfully helped many children with eating disorders and tube dependency.
At the beginning of 2018, the time had come at last – NoTube was moving! After days of carrying boxes, cleaning up, cleaning out, and building furniture, we were finally moved into our new accommodations at Lenaugasse 5 in Graz.
Tube dependency occurs in children who received a temporary feeding tube but stay tube fed after stabilization of the underlying medical condition because they cannot transition (back) to oral feeding.
After successful surgery and months of aftercare, most children born with esophageal atresia are able to eat orally from a technical point of view. Unfortunately, many of them have developed tube dependency as a result of the various interventions.
Each month, we will be choosing new topic to explore on our homepage, through social media and in our newsletters. We also start offering Live-chats where it will be possible to ask questions on a range of topics and have our therapists answer.
NoTube’s year in numbers: exciting, busy and full of innovations! The following lines provide an overview about NoTube’s activities in 2016.
The most frequently discussed aspect of tube weaning is the reduction of tube feeding. Should the amount of nutrition be reduced and, if so, how much and how fast? Raging myths abound around hunger vs. starving during tube weaning. Here is some information from our experts perspective.
Children with Costello syndrome often have severe feeding difficulties. They need a highly specialized treatment for learning to eat orally.
Families from 9 countries participated in NoTube’s Eating school. We are happy that all children made considerable progress in learning to eat.
The NoTube Eating School provides a two week on-site course and provides intensive feeding therapy and tube weaning.