We have been making use of our time recently to reevaluate our tube weaning success rates. 97.2% of Netcoaching participants and 94.7% of Eating School participants were fully weaned and able to sustain themselves orally at the end of the program.
At the beginning of 2018, the time had come at last – NoTube was moving! After days of carrying boxes, cleaning up, cleaning out, and building furniture, we were finally moved into our new accommodations at Lenaugasse 5 in Graz.
Tube dependency occurs in children who received a temporary feeding tube but stay tube fed after stabilization of the underlying medical condition because they cannot transition (back) to oral feeding.
After successful surgery and months of aftercare, most children born with esophageal atresia are able to eat orally from a technical point of view. Unfortunately, many of them have developed tube dependency as a result of the various interventions.
Each month, we will be choosing new topic to explore on our homepage, through social media and in our newsletters. We also start offering Live-chats where it will be possible to ask questions on a range of topics and have our therapists answer.
NoTube’s year in numbers: exciting, busy and full of innovations! The following lines provide an overview about NoTube’s activities in 2016.
The most frequently discussed aspect of tube weaning is the reduction of tube feeding. Should the amount of nutrition be reduced and, if so, how much and how fast? Raging myths abound around hunger vs. starving during tube weaning. Here is some information from our experts perspective.
Children with Costello syndrome often have severe feeding difficulties. They need a highly specialized treatment for learning to eat orally.
Many babies and children with Down syndrome (DS) face feeding difficulties or are even tube fed. But is there a reason why kids with DS shouldn’t be able to learn to eat and enjoy the world of food? Why do children with DS receive a feeding tube?
Families from 9 countries participated in NoTube’s Eating school. We are happy that all children made considerable progress in learning to eat.