The weight war – battling with numbers
By children who were born with an illness or abnormality and/or who exhibit an eating problem or who are fed with a feeding tube, every day is defined by numbers – the child’s weight is measured several times a week, the calorie count of the enteral nutrition is calculated, the quantity of each meal is measured out.
Fulfilling a heart’s desire – learning to eat for children with congenital heart defects
Today, survival is not uncommon for children under 500 grams and bordering the 23 and 24 weeks of gestation. What are the needs of premature children?
“To eat or not to eat, that is the question” – Feeding problems in children with CHARGE syndrome
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Eating disorders and tube dependency in children with esophageal atresia
After successful surgery and months of aftercare, most children born with esophageal atresia are able to eat orally from a technical point of view. Unfortunately, many of them have developed tube dependency as a result of the various interventions.
8 reasons why diaphragmatic hernia and tube dependency are connected
Apart from the life threatening risk right after birth, up to pulmonary hypertension which might be dangerous for a few more months, over the different breathing problems, the long-term difficulties of diaphragmatic hernia are often underestimated. Problems which are rarely taken into consideration are eating disorders, or even worse: tube dependency. How does this problem develop and how could it be avoided?
A Delicate Being: Considering the Needs of Premature Children
Today, survival is not uncommon for children under 500 grams and nearing 23 or 24 weeks of gestation. What are the needs of premature children?
Intrauterine growth retardation
Intrauterine growth retardation means that the child during pregnancy was not able to reach its genetic growth potential. If the IUGR child has had a tube placed it is important to know if catch-up growth is expected. NoTube children who are supplied with a feeding tube and are prescribed large quantities of food in order to catch-up.
What is failure to thrive (FTT) and why can it lead to tube feeding?
Failure to thrive describes a child that fails to meet its growth expectations, and although often referred to as a diagnosis, it is only a descriptive term and word for defining the observed state. In a large number of children the cause of reduced food intake is food refusal due to behavioural or eating disorders, these are multifactorial in origin. It is important for medical professionals to identify these and try to treat them before considering tube feeding.
Weaned from the tube after oesophagal atresia: the story of Srna
A heroine’s story that started in Belgrade in 2012, when an oesophageal atresia was diagnosed at Srna’s birth.
Tube feeding and weaning in children with Costello syndrome
Children with Costello syndrome often have severe feeding difficulties. They need a highly specialized treatment for learning to eat orally.