How time flies – another year is drawing to a close and we at NoTube look back on eventful months, in which we successfully helped many children with eating disorders and tube dependency.
Your child is you tube fed and you are looking for a tube weaning program. Many different resources and approaches can be found in the internet and many information found can be confusing. We have collected some crucial advice and important criteria for parents, who seek help for their tube-fed child.
Mealtime is a multisensory experience. Let’s take a closer look at the specific sensory properties that influence our mealtimes to better understand how multisensory input might be influencing the mealtime experience of children.
Despite years of proven clinical expertise and an exceptional publication activity, the NoTube method is sometimes still criticised and inaccurately viewed. We want to respond to the most common rumors and misunderstandings that we have heard about NoTube’s reputation.
By children who were born with an illness or abnormality and/or who exhibit an eating problem or who are fed with a feeding tube, every day is defined by numbers – the child’s weight is measured several times a week, the calorie count of the enteral nutrition is calculated, the quantity of each meal is measured out.
What about children whose food repertoire becomes limited to fewer than five options and who, after weeks or even months, can’t allow for even the smallest alterations?
Apart from the life threatening risk right after birth, up to pulmonary hypertension which might be dangerous for a few more months, over the different breathing problems, the long-term difficulties of diaphragmatic hernia are often underestimated. Problems which are rarely taken into consideration are eating disorders, or even worse: tube dependency. How does this problem develop and how could it be avoided?
NoTube’s year in numbers: exciting, busy and full of innovations! The following lines provide an overview about NoTube’s activities in 2016.
From a developmental perspective, eating is an integral part of sensory and motor development. Children that are tube fed and do not eat orally miss out on some opportunities to work on certain skills while eating, potentially delaying their motor, socio-emotional and language development.
Everyday life with a tube fed child is never easy and the parent who decided to take full-time care of the child needs breaks sometimes. There are a few possibilities to break from the routine. It might be an advantage for the child as well as for the parents to meet other families.