Netcoaching

Our experienced team has many thousands of successful tube-weans behind them. Every child undergoes a standardised diagnostic process where our experts will determine whether your child is suitable for this treatment approach. Through our interdisciplinary collaboration (every child in Netcoaching is attended by a paediatrician, a psychologist, and a specialized therapist), we ensure the highest level of safety for your child. We are available on a daily basis, including weekends and holidays.

As closely as parents, caregivers and local medical professionals would like. If beneficial and workable on both sides, any medical providers can be given access to our online portal by receiving the login information from the child’s parents. This allows them to ask questions or contribute their own comments and suggestions and will only require 2-3 minutes of the physician’s or therapist’s time per entry. What is important to the NoTube team is that no medical provider who wishes to participate is coming from an overall objection to tube weaning in general and that – in the case of major scepticism or bias – these problems are cleared up after completion of the assessment and before commencement of the tube weaning process. It is important that the psychological burden of the parents during the tube weaning process not be compounded by conflicts of loyalty and the potential for misunderstanding and disagreements around opposing medical perspectives when these are avoidable. The NoTube team is always open and prepared to incorporate suggestions and treatments from your local providers as they have been deeply involved in your child’s prior medical care.

This is a frequently asked and very important question that is addressed before and during the assessment process. We will only grant a positive assessment of suitability if we believe the Netcoaching program can help your child learn to eat. Ups and downs in parent’s perceptions regarding their child’s improvement are normal, as is the ongoing identification of potential obstacles, and these must be discussed on a regular basis – respectfully, delicately and comprehensively. That is why our experts are there for you on a daily basis.

The likelihood that your child will not be capable of learning to eat, despite a positive outcome from the assessment and review of suitability for the program is minimal. However, unforeseen events can always occur, such as an illness or worsening of the medical situation, and we will find solutions to these on an individual basis. In most cases, tube weaning can and will be completed within 6 months, sometimes even faster. Every child is an individual and requires more or less time to be successful – the Netcoaching program can give them that time, as there is no set time limit for completion. In rare cases, it is possible that a child’s degree of illness or disability does not allow for a transition from enteral to oral nutrition, because it simply requires too much time and energy or because the child has an illness where there are only short periods where they can sustain  themselves without oral intake.  In these cases, it may be that a partial tube wean is the ultimate goal (e.g. allowing the child to eat and drink as much as possible during the day and receive supplementary tube feeds at night).

The length of Netcoaching is not predetermined. We support you and your child until 35 days after the last tube feed, under the condition that your child is in general good state of health and their weight is stabilized. It can take anywhere from a few days to several months before your child is ready to give up their tube feeds completely: Netcoaching gives your child that time. In the unlikely case that the weaning process cannot be completed within 6 months, we will review the situation together.

We consider a child who has achieved a stable weight and has maintained good general health while receiving nutrition fully orally for over one month to be successfully tube weaned. Having said this, we also understand that some parents prefer to continue with close support after this point. To meet this need, you can book our “Aftercare” ticket within a four-month period after the completion of the Netcoaching program and extend telemedical support on a month-to-month basis.

Videos can be easily uploaded to our platform directly from your smartphone or tablet. You can either film the video first and then log into the NoTube Netcoaching platform and upload the video, or you can do it the other way around. Both options work! If you prefer to upload a video from your camera or laptop, we will set up an upload button for you in your personal NoTube account.

During the first week of treatment, we will work closely with you to help your child reach their full potential. If during this time, you are unhappy with our work or feel we are not in a position to help your child, you can contact NoTube at any time via email at help@notube.com to cancel the program. We will offer you a complete refund of treatment fees.

Since we work with patients from countries all over the world, each with their own unique insurance system, there is not a single and comprehensive answer to this question. We are happy to support you in the process of submitting a request for reimbursement to your insurance company. If you would like to find out if your insurance plan has covered the Netcoaching program in the past, send us an email request at help@notube.com, and we will gladly search our database for relevant information.

Your child will be treated by a team of at least three experts: a paediatrician, a clinical psychologist, and a therapist from either physical or occupational therapy. Our team has collective experience with many thousand successful tube weans. Interdisciplinary collaboration is foundational to our process and comes naturally to us.

By participating in our Netcoaching program, you will avoid the high risk of hospital related infection and the potential for retraumatizing hospital stays in addition to saving travel costs. Your child can learn to eat in the comfort of their own home, and all members of your family can be active participants in the process. Moreover, your child can continue to attend their nursery or primary school as well as any other essential therapies. Our team is made up exclusively of experienced and highly specialized professionals in the field of tube weaning.