After successful surgery and months of aftercare, most children born with esophageal atresia are able to eat orally from a technical point of view. Unfortunately, many of them have developed tube dependency as a result of the various interventions.
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What about children whose food repertoire becomes limited to fewer than five options and who, after weeks or even months, can’t allow for even the smallest alterations?
Apart from the life threatening risk right after birth, up to pulmonary hypertension which might be dangerous for a few more months, over the different breathing problems, the long-term difficulties of diaphragmatic hernia are often underestimated. Problems which are rarely taken into consideration are eating disorders, or even worse: tube dependency. How does this problem develop and how could it be avoided?
Today, survival is not uncommon for children under 500 grams and bordering the 23 and 24 weeks of gestation. What are the needs of premature children?
What is the difference between tube weaning and feeding therapy? Professor Scheer explains what distinguish NoTube from other concepts.
Each month, we will be choosing new topic to explore on our homepage, through social media and in our newsletters. We also start offering Live-chats where it will be possible to ask questions on a range of topics and have our therapists answer.
NoTube’s year in numbers: exciting, busy and full of innovations! The following lines provide an overview about NoTube’s activities in 2016.
The most frequently discussed aspect of tube weaning is the reduction of tube feeding. Should the amount of nutrition be reduced and, if so, how much and how fast? Raging myths abound around hunger vs. starving during tube weaning. Here is some information from our experts perspective.
At NoTube, we’ve had an eventful year in 2016. Most significantly, we now feel even closer to our little patients than ever before. This is due to our new therapy center that enables us to welcome families from all over the world in Graz. This is the story of how this therapy center came to be and what we have learnt from operating it for the past year.
From a developmental perspective, eating is an integral part of sensory and motor development. Children that are tube fed and do not eat orally miss out on some opportunities to work on certain skills while eating, potentially delaying their motor, socio-emotional and language development.