Tube feeding and weaning in children with Costello syndrome
Children with Costello syndrome often have severe feeding difficulties. They need a highly specialized treatment for learning to eat orally.
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(Tube) feeding in children with down syndrome
Many babies and children with Down syndrome (DS) face feeding difficulties or are even tube fed. But is there a reason why kids with DS shouldn’t be able to learn to eat and enjoy the world of food? Why do children with DS receive a feeding tube?
Dinner is served: blended food versus tube formula
History, advantages and disadvantages of blended food and tube formula.
Strange Love – How I learnt to love the tube
From the many reasons to hate the feeding tube. And how it is still possible to come to terms with it.
Eating disorders and autism
Though children with Autistic Spectrum Disorder (ASD) are unable to understand feelings it is still possible to help them learn to eat and try something new.
What does the beginning of the learn to eat program look like?
In our Learn to Eat program we work on the problems in preparing food, mealtime situations, and find mutual solution.
What I learnt from being fed by feeding tube for a week (Part 2)
This post is the second of a 4 post series in which I share what I learnt from consuming all my nutrition by feeding tube for a week in order to better understand what families of tube-fed children have to go through.
Malnutrition in children with feeding tubes
The hypothesis that sufficient enteral nutritional support automatically leads to optimal weight gain unfortunately does not prove true for all children.
Siblings of tube fed children. Do they suffer?
For the healthy sibling it is an especially difficult situation when the tube fed child comes home from hospital and the parents are responsible for additional care duties.
Tube weaning from the perspective of a team trying to support tube weaning
The present text does not constitute a manual for tube weaning at home, but is designed to give an overview of the phenomenon of tube weaning from the perspective of a doctor.