Children with Costello syndrome often have severe feeding difficulties. They need a highly specialized treatment for learning to eat orally.
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Many babies and children with Down syndrome (DS) face feeding difficulties or are even tube fed. But is there a reason why kids with DS shouldn’t be able to learn to eat and enjoy the world of food? Why do children with DS receive a feeding tube?
History, advantages and disadvantages of blended food and tube formula.
From the many reasons to hate the feeding tube. And how it is still possible to come to terms with it.
Though children with Autistic Spectrum Disorder (ASD) are unable to understand feelings it is still possible to help them learn to eat and try something new.
In our Learn to Eat program we work on the problems in preparing food, mealtime situations, and find mutual solution.
This post is the second of a 4 post series in which I share what I learnt from consuming all my nutrition by feeding tube for a week in order to better understand what families of tube-fed children have to go through.
The hypothesis that sufficient enteral nutritional support automatically leads to optimal weight gain unfortunately does not prove true for all children.
For the healthy sibling it is an especially difficult situation when the tube fed child comes home from hospital and the parents are responsible for additional care duties.
The present text does not constitute a manual for tube weaning at home, but is designed to give an overview of the phenomenon of tube weaning from the perspective of a doctor.