Tube Optimization Program
What Is The Problem?
• Does your tube-fed child experience symptoms like vomiting, gagging or retching during or after tube feeding?
• Not sure whether your child is getting enough nutrition through the tube?
• Do you feel left alone by your doctors at home regarding tube feeding?
You’re not alone – over 50% of children with feeding tubes experience side effects
- In a recent study of 368 tube-fed children, over 50% reported frequent vomiting, retching and gagging.
- 30% of tube-fed children are malnourished by the standards of the World Health Organization (WHO).
Do you feel left alone in dealing with these side effects of your child’s tube?
How Does Tube Optimization Work?
Having worked with over 3’500 tube-fed children over the last 25 years, our team of experts knows how to reduce or eliminate many of these worries and symptoms with targeted therapeutic advice. We strive to be your “one-stop shop” for all tube-related matters integrating your medical team at home as well as counselling you on these matters.
We will work in these areas:
1 MEDICAL
What was the primary indication for ENS and is it still present? What is considered to be normal growth for your child? Do disease specific growth charts need to be considered?
2 CARE TEAM
Which professionals are currently involved with the ENS? What are their respective responsibilities?
3 NUTRITIONAL
What kind of nutrition does your child receive and does it cover all metabolic needs? How is growth and nutritional status checked and by whom?
4 FEEDING SCHEDULE
At what intervals and at which speed does your child get its feeding? Why was the current feeding schedule adopted?
5 PHARMACOLOGICAL
Does any medication interfere with the efficacy of the tube feeding?
6 TUBE MAINTENANCE
Which ongoing tube maintenance and management procedures does your child receive? To which degree are they necessary?
Key Benefits For You
- Get every question answered quickly, mostly in less than 12 hours.
- 24/7/365 support from the medical experts in tube weaning.
- Start the program immediately.
- Stay at home in your familiar environment where the child feels safe.
- Avoid the stress and expense of traveling.
Why Does The Tube Optimization Program Work?
Your individual coach and companion
Have your individual coach, companion and escort for your child and family through the medical world with a focus on minimising unnecessary actions and evaluate as well as coordinate necessary examinations and future interventions.
Receive help and assistance for your child and family to recover emotionally, physically and practically from intensive care and make the transition of devoted and highly specialised caregivers for a medically fragile child to becoming “normal parents” of a special child.
Our highly-skilled team of experts
From pediatrics to nutritional science, from psychology to psychotherapy and physiotherapy, we’ve got all areas covered internally to ensure your child and family receive the best treatment possible. In caring for over 3’500 tube-fed children, we have become specialists in understanding how tube-fed children and their families work.
With our team’s experience in tube management, feeding and weaning, there are no questions or situations that are too difficult for us to handle, even if your child’s situation is extremely complex or unusual. Our lead doctors have worked in this field for more than 30 years and you and your child will benefit greatly!
Continuous support anywhere
Instead of seeing you and your child once a month or fewer times, we will work with you on a day-to-day basis using messaging, video and tube feeding protocols on our online platform 24 hours a day anywhere you want to.
- Communicate with our medical team throughout the day.
- Adjustments can be made continuously right at home or anywhere you want to while our team supports you.
As a result of this everyday support, big changes can take place during our time of working together.
Tube Optimization Program Costs
ASSESSMENT
- Evaluation of standardised medical questionnaire
- Review of medical records and assessment of child’s suitability for this program
- Video analysis
An assessment is required to define the suitability of your child for the program. It is based upon a detailed medical questionnaire, video analysis and review of medical records. Two of our doctors will review your information and provide you with a detailed medical evaluation of the status of your child, and whether we believe that our team is able to significantly reduce the challenges your family is experiencing with tube feeding. The cost of the assessment is a one time fee of EUR 120.-.
TUBE OPTIMIZATION PROGRAM
- 24h access to our online platform for 90 days
- Unlimited consultations with our experts
- In depth analysis of your child’s health status
- Highly individualised optimisation of your child’s tube feeding routine and nutritional situation as well as minimization of tube-related side effects
- Recommendations for non-nutritive stimulation
- Video analysis and specific advice on tube feeding techniques
- Improvement of social integration as well as organisation of additional therapies
- Advise on any tube-related medical concerns and issues
The Tube Optimization Program lasts for 90 days in which we will work together towards our mutually agreed goals. If, during the first seven days of working with our team, you do not want to continue, we’re glad to refund the entire fee, so you have nothing to lose.
Wonder if the Tube Optimization Program is right for your child?
Download Ebook: 3 Types of Feeding Tubes and Their Side Effects
If you don’t know which type of feeding tube is the right choice for your child this free guide will introduce you the 3 types of feeding tubes, reveal how they work and which side effects they may cause.
You will learn:
- Which types of feeding tubes exist;
- How they work;
- The potential side effects they are known to cause.
