Dylan – American. Dylan was born with Hypoplastic Left Heart Syndrome and was tube fed from birth. Dylan and his family worked with several different therapists during his life to wean the tube with no success. Later he was diagnosed with “severe oral aversion.” The pediatrician said that he would be tube dependent until 3 or 4 years of age. He vomited 5-7x daily and had plateaued for weight in the 26th percentile. He would not touch food and would cry at the sight of any spoon, bottle, sippy cup or other food. He was behind in major developmental milestones. He could not sit without support, wouldn’t crawl or try to sit up or stand up. The family turned to Notube when Dylan was 11 months old and started the Netcoaching program in April 2013. On day one of our program, the vomiting stopped and never returned. On day three, he could already sit, crawl and even tried to stand up. On the third week Dylan started to eat food. He never cried at the sight of food anymore. On the fifth week the family did the last feeding with a tube and never used it again. His G tube was removed six weeks later. When his first birthday came around all the family watched overjoyed, as he ate his cake and loved it. After 3 months of weaning, Dylan shot up to the 82nd percentile for weight. Notube took a child who was strapped to a chair for most of the day, miserable because he was constantly vomiting, who was unable to explore his world because the tube was hindering milestone achievement and totally gave him his life back. It was an amazing transformation.
From the parents
My son had plateaued for weight at the 26th percentile. Once we weaned the vomiting stopped, he caught up quickly on developmental milestones he had been failing in his whole life, he had more energy, he was happier, we were happier, we could enjoy meals together as a family, we started being able to be out and about more, he stopped destroying all his clothes with tube leakage, he started sleeping better and thru the night for the first time and he started gaining weight for the first time. That was two years ago. We just went to the Pediatrician and despite the fact he has a very balanced diet he is now of “elevated BMI” – basically he is “overweight” now at the 92nd percentile. He is quite tall also. I always tell everyone my biggest regret is that we did not do it sooner. Worth every penny.