Ella and her family are from Zurich, Switzerland. Ella was born with Down Syndrome, Oesophageal Atresia and a cardiac defect. The oesophageal atresia was successfully repaired on day 3 of Ella’s life. However, due to the long term tube feeding Ella developed a tube dependency. She was completely tube-fed from the beginning of her life until she was about 7 months old.
From the parents
When Ella was 7 months, she received a PEG tube. Around that time we heard about NoTube. We immediately started the Netcoaching program with Dr. Prof Dunitz-Scheer. Ella had to learn how to eat from scratch, which was a big challenge for her and for us!
After a couple of weeks the quantity of her oral intake increased. She started to eat with joy and after four months she was completely tube free and the PEG tube will be removed this February 2013. We are very grateful to Dr. Prof Dunitz-Scheer and her great team!