Manuel H. and his parents are from Germany. Manuel was born with Down Syndrome and a cardiac defect. Because of Manuel’s severe sucking problems, he received a nasogastric feeding tube right after his birth and was fed by tube since that time. With assistance by the Notube team Manuel’s insurance company has confirmed to cover the costs for the NetCoaching program. So he was able to participate in the online tube weaning program in August 2013. At this time, Manuel was 19 months old. Short time after the start, Manuel started to make good progress and began to eat age appropriate food in a sufficient way. On October 19th, 2013 he was finally weaned off his feeding tube and has ever been eating orally since this time.
From the parents
Finally our ticket will be closed tomorrow and I really don’t know, how to thank you for all what you have made possible for us and Manuel by your guidance and support in Manuel’s tube weaning. It is so delightful to see how Manuel eats and drinks!!!!! ;-)))))))
Whenever I was asked about the detailed reason why Manuel is eating now, I answered that I can’t say it exactly as there were so many small pieces, like a mosaic you passed to us and especially to Manuel. That has enabled him to construct an unique and unaffordable masterwork. During this achievement we always felt in good hands because of the team’s professional and steadfast sovereignty as well as its gentle and some times refreshing, direct and open-hearted way of communicating with us.
Many many thanks from all of us and all the best for you all – and who knows, you always meet twice in a lifetime!!
Manuel, Thomas, Angelika and Lisa H.