Eight-year-old Marco and his parents live in Switzerland. Marco suffered from a trauma during birth, from which he recovered quite well, but his feeding tube is still in place. He has been tube fed for many years. In summer 2016, he and his parents attended one of our Eating Schools where he could be weaned successfully off his feeding tube. Now he is finally able to enjoy shared meals with his friends!
From the parents
Translated from french
What was your life like before you decided to sign-up for one of NoTube’s programs?
Days were full of rules, fixed times and dates, amounts – just completely tube dependent.
What were some of your most memorable experiences during the program?
Groups with Dr Karoline Pahsini. It was great to hear and share different stories.
Did you feel that your child received good care during the program and was NoTube’s staff attentive to your concerns?
Yes, we were welcomed and coached well and were taken seriously.
How has your life changed since you participated in the program?
Everything, there are no rules anymore and my child eats what it wants (he chooses the amount, drinks what and whenever he likes), we trust him, he is doing well, we do all things just as others do, without stress.
What’s the most awesome thing that has happened with your little one since completing the program?
To see him drinking fruit juice with his friends in the garden and hearing him say “Mum, I love this juice, could you buy more?” To remove his G tube without being afraid and especially seeing him sit at the table eating.